hEDS is not “just” genetic.  

New research explains why it seems progressive even if our genes do not change. Don’t usually post a link in a blog, but this explains it so well!

https://zebras.substack.com/cp/175736593

Why the current medical system fails those with hEDS

It has been referred to as the “diagnostic odyssey.” It can often take decades to get a diagnosis, with patients getting many diagnoses prior to an hEDS diagnosis due to the multisystemic involvement. There …

Does bracing cause atrophy in hEDS patients? Why I think, in many cases, it can actually prevent atrophy and even reverse it! This has come up in patient support groups, so I wanted to write a post about it.

I have a complete anterior cruciate rupture in my …

Is Hypermobile EDS progressive?

I would say the answer is yes, and no, and there is a lot of debate about this.

Genetics:

From a genetic standpoint, many argue that it is not progressive, and as far as the genetic codes are concerned, that is true. Our defective …

Did you know there is a link between EDS and Autism? 

I just got a diagnosis of Level 1 Autism at the age of 52.  

Here is a study showing the link:  

Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers-Danlos syndromes: A …

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Envision a day when Ehlers-Danlos Syndrome isn’t just a list of challenges but a gateway to new opportunities for health and wellbeing. For those navigating the physical and emotional landscape of EDS, the journey can be filled with …

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Understanding your health, especially the intricacies of genetic conditions like Ehlers-Danlos Syndrome (EDS), can significantly improve your quality of life. While living with EDS presents unique challenges, insight into the condition …

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Living with chronic pain can be a relentless and exhausting experience. Many individuals search for effective, long-term solutions to manage their discomfort and regain control of their lives. Prolotherapy, an innovative treatment method, …